Saturday, October 31, 2009

Lil' Punkin as a Punkin

Thanks to Anna, S didn't have to wear the crappy spider costume that her parents tried to make her at noon today. She ended up being a very cute little pumpkin instead of an ugly cat with six tails or big dread locks hanging off her back.

During a trip to the parade in Park Slope, all she wanted to do was push the stroller. There was nothing we could do to pull her away from that thing.

It soon became evident that the little pumpkin was out past her bedtime.

The recovery.

The meltdown. She didn't want to be carried home so she had a punkin tantrum.

So we let her push the stroller home while we ate all her candy (she's allergic to it anyway).

Monday, October 26, 2009

Then and Now

This is what life was like the day before we went to the hospital.

And this is what life was like in the hospital.

And this is a little of what we've been doing since we left.

Saturday, October 17, 2009

Going Home!

We finally got a good report from the docs at 6am and we are supposed to get out of here as soon as they get back here to check her oxygen one last time. Docs are taking. for. ever.

In the meantime, an energetic S is keeping us busy, as usual.

Thursday, October 15, 2009

Susannah's Medical Drama: Chapter 237

Saturday she had a runny nose, Sunday night she started wheezing, Monday morning we had to go to the ER.

It seems she has pneumonia.


She is at Brooklyn Hospital getting round the clock care, breathing treatments, antibiotics and steroids. She is getting better but the progress is slow. Her oxygen levels (when she is off the oxygen machine) are not yet as high as they need to be. Not sure when we are going home; it is a day to day thing.

She can't move around much or even go that far from the crib because she's hooked up to the oxygen almost all the time. We've been watching A LOT of Baby Einstein. Mom and AL are here which has been so awesome and so necessary. Poor Ben is working and not feeling well himself. I am almost used to sleeping in pleather recliners that don't recline while the machines beep and the florescent lights go on and off and people constantly come in to do something (but when you actually need something no one seems to be around).

When we get out of this, I would like to have a magic bubble to seal her in for the next, like, 25 years. Because I can't do hospitals any more! No mo. no mo.

Tuesday, October 6, 2009


Today's sonograms showed that Susannah's kidneys are finally starting to come down to size! The doctor thinks that we are on the right path. She has been without any stents or tubing for about a month now, and she's been off the bladder medication for about the same amount. For her kidneys to decrease in size -- on their own without any intervention -- is a huge step forward for us. It seems that she just has this baggy, stretched system that will take time to get to normal. We'll go back to Columbia in two months for a follow-up visit.

Hard to believe that a year ago today she had her first surgery. What a long strange trip it's been ... and we are so grateful that we are finally starting to see the end.

Time to celebrate! Susannah's asleep and we are drinking cava and eating take-out.

Sunday, October 4, 2009

A Sunny Sunday at the Playground

After a few days of cranky-pants (teething, maybe?) Susannah was all smiles this weekend. We had rain Saturday but a perfect weather today. She's been doing great -- eating lots, trying to go down stairs with the push toys, playing peekaboo, practicing the hand motions for itsy-bitsy spider, and flirting with anyone and everyone. She's also becoming a bit, uh, demanding. We are trying to teach her to say "please" and "thank you" without much success. Her newest nickname is POTU -- Princess of the Universe.

We are back at the urologist for a dreaded sonogram and office visit on Tuesday. Let's hope that Susannah's insides are looking as good as her outsides.